Every year I make a video that begins just after Larkin’s birthday and I wrap it up with pictures of her birthday. I work on this all through the year, uploading as I take pictures capturing the moments of our life.
It is always a nice surprise for me when I go back to the beginning as I rarely look at it once settled with music. I move onto the next part of the year.
All of you know the journey of the Armstrong family. You know how hard we have fought to get this little girl to where she is today. To have lost her smiles, laughter and never have had affection – then to see this year where we are one-year seizure free – her gain ground developmentally and we relax just a tad bit.
Now when I say “seizure free” I mean that in the clinical sense. We no longer see the seizures. We know that inside her little brain there is probably still a lot of seizure activity. We know with the diagnosis of Lennox-Gastaut we went from cure to management.
A lot has happened during this year. Larkin is doing well. Chase is an amazing young man. Sharing our life with you, reading your comments, and knowing that you are cheering us on. Larkin’s Place is real and God has truly blessed us.
I am sharing the video here. It is about 10 minutes long and you never know if you might see yourself in here. J I have a habit of catching you holding L or hanging out with us.
Enjoy the video or if your ADD kicks in, clean the kitchen. Either way – thanks for sharing our ride and loving our girl.
Let it go,
Let it roll right off your shoulder
Don’t you know
The hardest part is over
Let it in,
Let your clarity define you
In the end
We will only just remember how it feels
Our lives are made
In these small hours
These little wonders,
These twists & turns of fate
Time falls away,
But these small hours,
These small hours still remain
So very hard to articulate the words I want to say, after seeing the video.I’ll try my best.The very first feeling that I had as I watched,was what joy came from each and every picture.With that said however,I also know too well, the pain and tears that had to be endured to get to this place,this very minute,this very moment.As I watched I saw clearly the tremendous love between a brother and a sister.An entire family who has given anything and everything to reach this place,which at times seemed I also know seemed so extremely unattainable.You all should be so proud of yourselves.You have a beautiful family.Given a gift which has enabled you to view life with different eyes and which then yielded a whole new perspective.Thank you for allowing me into your little piece of the world.It has allowed me to see possibility when often we have been overwhelmed by instability.It has allowed me to face the future with unbridled hope rather than fear of the unknown.Beautiful job Amy,as usual.
what a lovely family you have….