Larkin is doing so great!  I couldn’t have asked for a better day with her.  She was so patient and quiet while the EEG tech glued all the probes to her head and then wrapped her up.  She wears a little backpack that holds the control unit which plugs into the wall.  We have a long cord but we are confined to the room.  No news until the morning so I am waiting with a knot in my stomach.  Since I play a Neurologist I peeked into the video room to see what the waves looked like.  Much improvement from 1.5 years ago but I could see spikes – but since I am not a real Neurologist I am going to defer until morning.  Thought I would share some pictures from here in STLCH.  It is good to be here though as the things you see happen here, the children who are going through so much more, families with that blank tired look…….makes me appreciate Larkin that much more.  Things could be worse and perspective is given.

Some friends that I have made along the way in this journey came by the hospital to visit us and bring dinner up. I enjoyed visiting with RK, Adrienne, and Julie for a couple of hours and it was a nice break from worrying.

The view from our room – not too shabby at 12k a night 🙂

She was doing laps around the crib all day

Backpack and she is hating her wire pony tail

Good friends