Good news for a change

We leave STLCH with tears of joy!  The EEG is hugely improved from last and while there is still some epileptic activity, the doc’s said you have to look through a lot of EEG to find it.

Short  post because I want to get out of here – but THANK YOU for you prayers, love, and concern.  Our girl is getting better and we will begin a wean down of the diet beginning May 1.  We decided to do it now because Larkin is in school and I will have the added benefit of her team watching her development and if anyone spots any changes or regression we need that input.


This entry was posted in Uncategorized. Bookmark the permalink.

22 Responses to Good news for a change

  1. Jen says:

    HappyDance,HappyDance,HappyDance,HappyDance,HappyDance,HappyDance,HappyDance,HappyDance,HappyDance!Have a good drive home.

  2. lbotp says:

    What beautiful news on a beautiful day … isn’t it a wonder.

  3. RK says:

    Safe travel, my friend. We’re celebrating with you!! It was awesome to get to just chill and chat with you last night.

  4. Rory says:

    I have goose bumps. congrats She is amazing!!!!!!

  5. Zoey's mo says:

    Go home.Run infact and rejoice for sure!!God is indeed great.

  6. Lisa says:

    That is great news!!

  7. Terri says:

    GOD IS GREAT! Such wonderful news.

  8. Rebecca says:

    How wonderful!!!! Great news!

  9. Dianne says:

    I’m so happy to hear the good news! What an amazing little girl Larkin is.

  10. Mara says:

    Amy, I am so so so so happy for you and Larkin. She truly is a miracle. Love ya.

  11. Fawn says:

    Oh, I am overjoyed to hear this news. Wonderful! Absolutely wonderful! I am looking forward to hearing about the wean — what fun it will be to be able to introduce foods she’s never been able to have!

  12. Anne says:

    How exciting! So glad to hear your news! 🙂

  13. Amy says:

    woo hoo!! what great news!!!! that made my day!

  14. Ecki says:

    So happy it all went well!

  15. ricky's mom says:

    That is the best news!

  16. Ami G says:

    Wonderful news! So happy things are going well and Larkin is moving in the right direction…sending many prayers for everything to continue to go smoothly!

  17. Melanie Bates says:

    Oh Amy what wonderful news! God is so great!!! As we head out soon on our journey to AZ I just wanted to let you know that you and your family have forever touched our lives. We will continue to check in from time to time and only pray that we continue to hear more great news about Larkin and her stages of development as well as the progress with LP. Thank you so much for leaving such a positive spot in our hearts and in the community that we so dearly love and miss!!! Great news and big hugs to you and your family.

  18. Cynthia says:

    I’m so VERY VERY happy about this….

  19. doing the happy dance for you guys… just thought I would check back in to see how the wean was going. hugs to you all… such wonderful news

  20. doing the happy dance for you guys… just thought I would check back in to see how the wean was going. hugs to you all… such wonderful news … yipee

Leave a Reply